Kinda sick ^^;

L△LIA
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BOOM SH△KALAKA

Kinda sick ^^; Jan 24, 2015 21:28:58 GMT -5

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Post by L△LIA on Jan 24, 2015 21:28:58 GMT -5

Some of you know that I have chronically recurring autoimmune problems, so I figured I'd give a heads up that I'm having a bit of a relapse again. (I'm hemolyzing, which basically means that my body is breaking down my red blood cells.) We caught it early, so at the moment it isn't serious and I'm hoping it'll stay that way and I can avoid all things scary. But yeah, just in case I go more MIA than usual, that's what's happening. Really the worst thing right now is that I get tired super easily and my brain is a little bit bllllleeeeeggggghhhhh all the time, but hopefully it's early enough that I can get fixed up right away. ^^

Last Edit: Jan 24, 2015 21:29:13 GMT -5 by L△LIA

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Baby Wessex d9 [earthling] Administrator 9,571 POSTS Pronouns: She/Her last seen Sept 21, 2024 22:19:34 GMT -5 cameron stood in line for an hour for a stupid ride for me <3 best <3	Kinda sick ^^; Jan 25, 2015 14:15:53 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Baby Wessex d9 [earthling] on Jan 25, 2015 14:15:53 GMT -5 Sorry to hear. Bodies are such temperamental things. Hope it does get fixed quickly, Lalia! <333
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✨ zozo. Retired Staff 8,203 POSTS Pronouns: she/her last seen Sept 22, 2024 2:01:44 GMT -5 bloomtodeath	Kinda sick ^^; Jan 25, 2015 18:22:39 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by ✨ zozo. on Jan 25, 2015 18:22:39 GMT -5 Hope you're feeling better soon, sending love <3
	“and men said that the blood of the stars flowed in her veins.”

pup Veteran Member 3,008 POSTS Pronouns: He/Him last seen Sept 14, 2023 20:52:48 GMT -5	Kinda sick ^^; Jan 27, 2015 8:28:51 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by pup on Jan 27, 2015 8:28:51 GMT -5 I'm really sorry to hear that Laila. I hope you get better really soon.
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L△LIA
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BOOM SH△KALAKA

Kinda sick ^^; Jan 27, 2015 11:46:19 GMT -5

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Post by L△LIA on Jan 27, 2015 11:46:19 GMT -5

Thank you guys <3333333

An update: My blood counts crashed last night, so now I'm not so good, tbh. I'm in the hospital, but I have a lot of antibodies in my blood, so they can't give me any transfusions right now. They're starting me on other treatments though, so hopefully that'll pick things back up.

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Loony District Mayor 732 POSTS last seen Mar 11, 2021 22:38:06 GMT -5 Rage, rage against the dying of the light.	Kinda sick ^^; Jan 27, 2015 12:53:26 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Loony on Jan 27, 2015 12:53:26 GMT -5 I'm so sorry to hear! I hope they get you fixed up ASAP and you'll be back writing amazing posts in no time. Feel better! <333
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Death Career Tribute 509 POSTS Pronouns: they/them last seen Feb 13, 2023 21:20:51 GMT -5 Just because you're trash doesn't mean you can't do great things. It's a garbage can, not a cannot.	Kinda sick ^^; Jan 27, 2015 15:36:49 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by Death on Jan 27, 2015 15:36:49 GMT -5 Feel better, Lalia! I hope you get well soon. ^^

cass Retired Staff 4,822 POSTS last seen Oct 24, 2021 18:11:43 GMT -5	Kinda sick ^^; Jan 28, 2015 1:26:04 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by cass on Jan 28, 2015 1:26:04 GMT -5 I hope you feel better soon, Lalia <333

rook Veteran Member 2,361 POSTS Pronouns: he/him last seen Sept 26, 2023 15:42:53 GMT -5 who needs another thing to be sad about?	Kinda sick ^^; Jan 28, 2015 8:12:42 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by rook on Jan 28, 2015 8:12:42 GMT -5 omg i only just saw this, i hope you're okay and feel better real soon D: <333
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k!ah Moderator 4,634 POSTS Pronouns: She/Her last seen Sept 21, 2024 9:49:02 GMT -5 #expensivetrash	Kinda sick ^^; Jan 28, 2015 20:06:49 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by k!ah on Jan 28, 2015 20:06:49 GMT -5 hope you get better soon lalia <33
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D6f Carmen Cantelou [aza] Advertiser 2,132 POSTS last seen Sept 16, 2024 14:51:10 GMT -5	Kinda sick ^^; Jan 30, 2015 2:26:20 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by D6f Carmen Cantelou [aza] on Jan 30, 2015 2:26:20 GMT -5 Get better soon Lalia! <33~

L△LIA
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BOOM SH△KALAKA

Kinda sick ^^; Feb 3, 2015 18:51:38 GMT -5

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Post by L△LIA on Feb 3, 2015 18:51:38 GMT -5

Okay okay. Another update, for anyone curious. Swear to Ripred I'm not trying to be dramatic or anything, I'm just attempting this strange new thing where I actually tell people what's happening in my life, lol. I guess I'm bad at that a lot of the time (it's a weird thing to tell people and to try to figure out who does and doesn't want to know things/who's okay with it and who's going to get freaked out if I say too much) and people who actually like me keep yelling at me for it. XD

My blood counts are stable, but low. I'm not breaking down blood anymore, which is super awesome, but the problem is I'm also not making new blood like I need to be. They're starting me on a new medication which should hopefully get my bone marrow working properly again. Omg I know that sounds scary, but I swear, I'm just hanging out in the hospital eating a lot of snacks and watching Downton Abbey. It's just a lot of waiting (give me netflix and kdrama recommendations and point me at more good threads to read, please and thank you <3 ) right now. I'll be hanging out doing nearly nothing for at least another week before I know anything new, probably. I asked about all the scary sounding stuff (bone marrow transplants and dskfjahsd), but I've been reassured that none of that is at all a thing right now and to just be a good girl and wear my bright yellow slippy socks like I'm supposed to, ftttt.

Thank you everyone for the love and good thoughts and <3333

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pup Veteran Member 3,008 POSTS Pronouns: He/Him last seen Sept 14, 2023 20:52:48 GMT -5	Kinda sick ^^; Feb 3, 2015 19:00:27 GMT -5 Quote Select Post Deselect Post Link to Post Member Give Gift Back to Top Post by pup on Feb 3, 2015 19:00:27 GMT -5 I'm glad your feeling partly better Laila and I can't wait for your bone marrow to work properly again. Also of you haven't watched it, Doctor Who is on Netflix. I'd think you'd really like it.
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Kinda sick ^^; Feb 3, 2015 20:42:09 GMT -5

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Post by chelsey on Feb 3, 2015 20:42:09 GMT -5

It's nice to hear that your blood count is more stabilized now! Get some rest and feel better <3

Also, here's some happy Matthew and Mary Crawley for you. (I fricking love Downton Abbey we need to discuss the beauty of this show sometime LOL)

"Isn't this the point of being young?"

^ bless avalon's soul ^

L△LIA
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BOOM SH△KALAKA

Kinda sick ^^; Feb 15, 2015 19:05:39 GMT -5

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Post by L△LIA on Feb 15, 2015 19:05:39 GMT -5

No changes, really. They've started me on another medication, but so far I'm still waiting around for my bone marrow to get going again. It's going to be a slow process. I've gotten this treatment before and it's worked really well in the past, so I'm still really optimistic about it. It fixes everything, evidently.

In the mean time they've given me a couple of blood transfusions. It's a tricky process, since they still can't match them properly, so they go about it an extra complicated way to make it as safe as possible. When my blood counts get extra low, my head gets just a little bit hazy, so that's why I sort of go back and forth between writing like a madwoman and not writing a thing, lol. It's a good way for me to gauge things, tbh.

Slowly but steadily getting sucked into Doctor Who, roflll, and I finally made a little bit of progress with flirting with Cute Doctor on Friday. 8D Despite the oxygen tubing shoved up my nose, the beginnings of steroid moon face, and my complete social ineptitude, I think I could be doing worse, so everyone feel free to give me cheesy pick-up lines and actual advice, haha. I think I'm maybe a little bit cute in comparison to the usual 70-some-year-old Rheumatology patients (or I've just got that Hazel Grace swag, hey hey). You should ship it.

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